Wednesday, September 11, 2013

Wow, it has been a long time since we posted!  Preston is doing well.  Thankfully his last few MRI's have been "stable" that he did not need one this year.  He will get one next summer, as long as he doesn't need one sooner. 
We are gearing up for the 6th annual Conquer Chiari Walk Across America walk on Saturday, September 21, 2013!  The walk is being held in 61 cities, across 39 states! Check to see if there is one near you if you are not in AZ!  We are so excited, we already have over 230 walkers pre-registered! 
If you are not able to make it to a walk, but would like to sponsor Preston, his fundraising page is: www.ConquerChiari.org/ccwaa13/PrestonWells. Please help us reach our goal of $1000!
We will have magnets and bracelets available to purchase at the walk.

Thursday, June 30, 2011

4th Annual Conquer Chiari Walk Across America!!!

We are so excited to be the organizers of the 4th annual Conquer Chiari Walk Across America for the Phoenix area this year!  The walk is on September 17, 2011.  It will be in 48 different cities, and 32 states, all on this date! 

If you have not registered to walk yet, please visit: http://www.conquerchiari.org/.  We are still looking for more corporate sponsors for the walk.  For as little as $100, your business name will be on the back of our shirts!  Please email us if you are able to donate and be a corporate sponsor!  We are also collecting donations for raffle items.  Please email ChiariWalkAZ@cox.net

If you would like to sponsor Preston for the walk, please visit his fundraising page at: https://www.conquerchiari.org/ccwaa11/PrestonWells

We ordered more magnets, so if you need any, just email (ChiariKid@cox.net).  Magnets are $3 each or 2/$5 plus shipping.  Proceeds from the magnets are donated to ASAP Kid's For A Cure Club, in honor of Preston!

Friday, July 16, 2010

We ordered MORE magnets!!

ASAP put an article about Preston in their newsletter for June talking about his magnet fundraiser!  We just sold out of our last magnets this week and have ordered more!!  We have sold 250 and just ordered 250 more!  We have orders for about 40 so far that we will fill with our new shipment.  We are so excited to get the awareness out to more people...look for those purple and white ribbon magnets on cars!  If you don't have one yet, now is the time!  Thank you ASAP, Preston is honored to be a part of ASAP's Kid's for a Cure Club and raise money for research to help find a cure!

We are so thankful Preston has been doing wonderful lately!  He had his shunt tied off on June 10 and is scheduled to have it removed on July 20.  His MRI on June 10 was essentially unchanged from the one he had 15 months ago.  He still has some herniation (chiari) and a syrinx from C5-T8...but is feeling good!

Thursday, July 30, 2009

Chiari Walks

We've reached over $150 in proceeds for ASAP with Preston's Magnet fundaiser! Please email Preston if you haven't had a chance to order your magnet yet! (ChiariKid@cox.net)
Thank you so much to everyone is helping us spread awareness!!

September is Chiari and Syringo awareness month. We would love everyone to join our team, Preston's Posse, for 2 walks that will be in September. September 20 is in Tempe, Miracle Race for Mylee Grace and her Chiari and Syringo friends (proceeds for ASAP), and September 26 in Glendale, for the Conquer Chiari Walk Across America (proceeds for Conquer Chiari).

If you aren't able to join us physically, we hope you may consider joining us virtually and sponsoring Preston.

His fundraiser page for the Miracle Race for Mylee Grace is: http://www.firstgiving.com/prestonwells

His fundraiser page for the Conquer Chiari Walk Across America is:
http://www.conquerchiari.org/ccwaa09/prestonwells

Thanks so much!!!
Beth and Preston

Thursday, July 16, 2009


Preston's fundraiser is going great! We have sold 85 magnets so far and raised over $100 for ASAP!! Thank you so much to those that have already purchased magnets and are helping us spread awareness of Chiari and Syringo!!


If you have not had a chance to get your magnet yet, please email Preston...we still have magnets available! (ChiariKid@cox.net)


We have set up Preston's fundraising page for the 2nd Annual Miracle Race for Mylee Grace and her Chiari and Syringo friends on September 20. We would love for you to join our team...Preston's Posse! Click on the link to support Preston, or join our team!

Here is the link for Preston's fundraising page for the walk: http://www.firstgiving.com/prestonwells


We will have his page for the Conquer Chiari walk available soon!


Thank you so much for helping us raise funds to support Chiari research and help find the cure!


Thursday, June 4, 2009

Preston's Fundraiser for ASAP

We searched online for a Chiari and Syringo awareness ribbon for our car and could not find one available...so we decided to have one created for Preston's fundraiser!

Preston is a member of the Kids for a Cure Club with ASAP (American Syringomyelia & Chiari Alliance Project). He is helping raise money for research to help find a cure for Chiari! Please help spread the word about Chiari by purchasing an awareness ribbon magnet for your car!

Magnets are $3 each or 2 for $5 (plus shipping). All proceeds from the magnets will be donated in honor of Preston to ASAP. Magnets are 3 1/2" x 8"

To order magnets, please contact Preston at ChiariKid@cox.net


The American Syringomyelia & Chiari Alliance Project, Inc. (ASAP) is a non-profit, 501(c)(3), member supported organization, chartered in May 1988.
ASAP funds educational, support and research programs.